Physician's Newsletter

Our Mission:
To develop a coordinated and efficient system of service delivery for clients and families living with dementia.

Contents:

Page 1 - 3:
Rural Mobile Dementia Care
Page 4:
Role of the Dementia Care Network

We would like to acknowledge the generous support of our sponsor

for making this newsletter possible.


For further Information please contact:

Alzheimer Society of
Lanark County
(613) 264-0307 or
1 800 511-1911
alz@superaje.com

Alzheimer Society of
Leeds-Grenville
(613) 345-7392
1 866 576-8556
administrator@alzheimerleedsgrenville.ca

 

VOLUME 1, ISSUE 1, SPRING 2003

Dementia Care Network
for Lanark, Leeds & Grenville
Physicians' Newsletter

Rural Mobile Dementia Care:
A Resource for Family Physicians and their patients in Lanark, Leeds & Grenville

Michael J. Kelly, MD, FRCPC
Clinical Director
Geriatric Psychiatry Community Outreach Program
Brockville Psychiatric Hospital
a division of the Royal Ottawa Health Care Group

The Rideau and St. Lawrence Valleys are rich in natural resources, heritage and beauty providing a high quality of life and a mecca for retirees. The counties of Lanark, Leeds and Grenville have a higher proportion of seniors (15%) relative to the provincial population (12%). While the majority is handy and resourceful, an aging subgroup is vulnerable to cognitive impairment and dementia. To assist this group, and other seniors with significant mental health difficulties, family physicians in Leeds and Grenville may consult the Geriatric Psychiatry Community Outreach (GPCO) Service of Brockville Psychiatric Hospital (BPH), a division of the Royal Ottawa Health Care Group, and those in Lanark may consult the Seniors Resource Team of Lanark County Mental Health (LCMH).

While urban areas have limited mental health services, the elderly population in many rural communities is vastly under-serviced. The BPH/LCMH Outreach Programs are cognizant of these difficulties and have developed effective programs to assess and treat seniors in their homes. Team members visit seniors at their residence, assessing and managing mental health concerns, chronic mental illness, behaviour disturbances/mental health problems associated with cognitive impairment, while actively pursuing partnerships to assist seniors through their illness. The comprehensive service provides a bio-psychosocial assessment, advocacy, intensive home monitoring as necessary, counseling, crisis intervention, support and education to caregivers through a shared care model with the primary care physician. The multi-disciplinary team, consisting of RNs, social work, psychology, administrative and clerical support, and psychiatrists, strives to advocate for the rights of the elderly, promote understanding of their unique needs, reduce suffering, while respecting the wishes and values of people in their senior years, in order to enhance their quality of life and that of their families.

The involvement of the community psychiatric nurse as an integral and indispensable part of the multi-disciplinary team has made it possible to offer mental health services to a large number of elderly in a vast geographical area. Assessment and triage for persons suffering with problematic cognitive symptoms and associated behaviour problems are made possible through the nurse's intervention. Patients, families, caregivers, agencies and family physicians report a high degree of satisfaction with the service delivery offered by the team. The location of team members in rural communities promotes an appreciation of local heritage, culture, health challenges and attitudes towards psychiatric intervention.

In urgent situations, individuals can be seen within 24 hours for most referrals, and in almost all circumstances the assessment is commenced, if not actually completed, within a few weeks. For the year of 2001, the combined teams assessed over 600 seniors and over half of these were followed on an ongoing basis in order to assist the family physician in monitoring and achieving treatment goals including compliance, support, and education for patient and family. The majority was assessed in their homes; and approximately 50% were assessed for possible cognitive impairment and/or for behaviour or psychological symptoms associated with dementia, such as agitation, aggression or confusion.

There are a number of resources available to which family physicians may refer their patient with possible or probable dementia. There are excellent memory disorder clinics at Elisabeth Bruyère Health Centre (75 Bruyère St, Ottawa, ON K1N 5C8, (613) 562-4235) and Providence Continuing Care Centre (340 Union St, Kingston, ON K7L 5A2, (613) 548-2222). Advantages include neurological and/or geriatric medical multi-disciplinary consultations and a full battery of tests usually completed through the institution. They also provide the option for research and clinical trials. Neurology can be helpful for individuals with unusual or atypical dementias, including those with movement disorders or focal neurological findings. Geriatric medicine is beneficial for those with complex co-morbid medical illnesses and the "geriatrics giants" such as postural instability and falls, immobility, incontinence, social breakdown and mental confusion.

Some communities in the counties are fortunate to have visiting neurologists or geriatric medical specialists. (REGAP, Regional Geriatric Assessment Program, Kingston location - Providence Continuing Care Centre (PCCC), St. Mary's of the Lake Hospital, 340 Union St. Kingston, ON K7L 5A2, (613) 544-7767, toll free 1-800-214-5848; Ottawa East Location - Elisabeth Bruyère Health Centre, 43 Bruyère St, Ottawa, ON K1N 5C8, (613) 562-6362; Ottawa West Location - Queensway-Carleton Hospital, 3045 Baseline Rd, Nepean, ON K2H 8P4, (613) 721-0041).

The BPH/LCMH Geriatric Psychiatry Community Outreach Programs are local resources that will assist family physicians in the assessment and/or management of the patients suffering from cognitive impairment, including dementia-related behaviours. These programs offer particular strength in ongoing monitoring in the home or long-term care facility and liaising with the family physician through a shared care model. This approach ensures that family physicians, in partnership with patients and their families, are the ultimate providers in the spirit of the principles of family medicine.


Leeds & Grenville patients can be referred to:
Geriatric Psychiatry Community Outreach
through Judy Einfeldt, Referral Coordinator
Brockville Psychiatric Hospital (BPH), a division of the Royal Ottawa Health Care Group
10 Oxford Avenue, PO Box 1050
Brockville, ON K6V 5W7
Telephone: (613) 498-1493 ext 2304
Facsimile: (613) 498-1495
The program office is staffed
Monday to Friday 8:15 a.m. to 4:30 p.m.
Emergency services are available after hours, weekends and holidays by telephoning the BPH at 345-1461 ext 2277.

Lanark patients can be referred to:
Geriatric Psychiatry Community Outreach
Seniors Resource Team,
Lanark County Mental Health
Senior Resource Team is a partnership between Lanark County Mental Health and the Brockville Psychiatric Hospital.
88 Cornelia St W, Unit A2
Smiths Falls, ON K7A 5K9
Telephone: (613) 283-2170 Facsimile: (613) 283-9018
Emergency services are available after hours, weekends and holidays by telephoning the BPH at 345-1461 ext 2277.

What is a Dementia Care Network?
Initiative #9 of the Ontario Strategy for Alzheimer Disease and Related Dementias refers to the development of a local, specialized network to support persons with dementia, their families and caregivers.

The purpose of the Dementia Care Network is to serve as a vehicle to facilitate people and resources coming together locally, regionally and provincially to improve the system of care, including service delivery, education and research. Improved linkages through a network are needed as the illness is progressive and requires a continuity of care and accessibility of specialized services at various times, across different sectors.

Benefits of a Dementia Care Network

  • Persons with dementia: benefit from improved access, and more timely and appropriate services, information and support to enhance their quality of life.
  • Families and caregivers: benefit from improved access to information, and a continuum of care and support.
  • Providers: benefit from enhanced education and support to improve the delivery of care, and client/family/caregiver satisfaction.
  • Health System: benefits from sharing expertise and utilization of resources.
  • Locally, Regionally and Provincially: networks serve as a forum for system-wide planning, problem-solving and evaluation.

Our local Dementia Care Network met for the first time on March 20, 2002. Invited to the inaugural meeting were caregivers, organizations and service providers in Lanark, Leeds and Grenville that provide care to persons with dementia and their families. Presently, the local network meets every two months (dedicated date is the 2nd Wednesday, every other month), the locations alternate between Leeds, Grenville and Lanark Counties.

The initial tasks of our local network were to take an inventory of services, and to identify gaps and problem areas, with the understanding that each community has strengths and resources to build upon. Key service priorities were identified based on community needs and focused on the client, resulting in the following Task Groups:

  1. Public Awareness and Early Diagnosis
  2. Education for Service Providers
  3. Ethical, Legal & Financial Issues: Respite is the current focus
    By analyzing the current system of services for persons with dementia, their families and caregivers, it is possible to compare existing services to the "ideal" model for the community.

Primary care physicians in the community with a special interest in dementia care are invited to join the dedicated group of stakeholders at our local Dementia Care Network meetings by contacting your local Alzheimer Society in Lanark County at 264-0307 or Leeds-Grenville at 345-7392.

Upcoming meeting of the local Dementia Care Network of Lanark, Leeds & Grenville to be held on:
Wednesday June 11, 2003 1000-1200 hrs, Lanark Lodge, Norm Ferrier Room, Perth

Both the Ministry of Health and Long-Term Care (MOHLTC) and the District Health Council (DHC) regional offices support the development of Dementia Networks on all levels.
(A Guide for Developing a Dementia Network, 2002).

VOLUME 1, ISSUE 2, FALL 2003

Dementia Care Network
for Lanark, Leeds & Grenville
Physicians' Newsletter

Assessment of Cognitive Status
In The Elderly:

From Screening for Dementia to
Neuropsychological Evaluation

Christopher R. Prince, Ph.D., C. Psych.
GPS Psychologist
Geriatric Psychiatry Community Outreach Program
Brockville Psychiatric Hospital
a division of the Royal Ottawa Health Care Group

The Geriatric Psychiatry Community Outreach Service (GPCOS) at Brockville Psychiatric Hospital (BPH) and the Senior's Resource Team of Lanark County Mental Health provide community-based assessment, diagnostic, treatment, and follow-up services to elderly people with psychiatric problems and/or dementia. Following receipt of a referral from a family physician, an initial assessment is completed by a registered nurse, psychiatrist, or social worker usually working in teams of two. Typically, a semi-
structured interview is conducted to elicit biopsychosocial difficulties. For clients suspected of dementia, cognitive impairment is assessed using the Mini Mental State Examination (MMSE)1, Clock Drawing Test (CDT), Confusion Assessment Method (CAM)2, and the Kingston Standardized Cognitive Assessment-Revised (KSCA-R)3. This article will review briefly the initial screening battery administered by the GPCOS to help determine a diagnosis of dementia.

Mini Mental State Examination. The MMSE is probably the most widely used cognitive screening test. It was first described by Folstein in 1975 who recommended a cutoff score of 23/30 or less, for the presence of dementia in persons with at least 8 years of education. It was called "mini" because it did not test mood or thought disorders. It was intended to assist psychiatric residents in the cognitive part of the mental status exam but was never meant to be used for diagnosis of dementia.

The MMSE has been used extensively in the field of dementia to screen for cognitive impairment, to estimate the severity of cognitive impairment at a given point in time, to follow the course of cognitive changes in an individual over time, and to document an individual's response to treatment. There have been many standardizations and papers written about its use in clinical trials. The benefits of the MMSE include its brevity (5-10 minutes to administer). Domains assessed include: orientation to time and place (10 points), registration of 3 words (3 points), attention and calculation (5 points), recall of 3 words (3 points), language (8 points) and visual construction (1 point).

Among the MMSE's many disadvantages are the limited number of cognitive domains sampled, the widespread acceptance of one cutoff score without taking into account factors such as age and education, differences in administration and scoring among examiners, and its insensitivity to the early detection of Alzheimer's Disease. Examples of inconsistent test administration include the choice between serial 7s and spelling "world" backwards (the latter being markedly easier to perform), the choice of words for registration, and the amount of time that lapses between registration and the recall of the 3 words on the memory portion of the test.

To counter some of these limitations, the GPCOS adopts a standardized approach and relies on normative data provided by Crum et al.4 to adjust for the effects of age and education. Generally speaking, in the well educated elderly (i.e., those with high school education and beyond), scores below 27/30 are thought to be abnormal in 75% of the sample. For those with 0 to 4 years of schooling, scores below 19/30 are thought to be abnormal in 75% of this group (see Crum article for more detail). The use of these norms helps reduce the MMSE's tendency to incorrectly identify the elderly with poor education as demented (i.e., high false positive rate). As the MMSE is not a diagnostic test nor is it equivalent to formal mental status testing, the GPCOS views the MMSE as a starting point in the screening for dementia.

Clock Drawing Test. The CDT is a useful addition to the GPCOS screening battery because it provides information regarding an individual's visual spatial abilities and executive functions (e.g., motor capacity, planning, organization, stimulus-bound responses, and perseveration).

Also, the CDT is usually well tolerated by the elderly. There are several scoring protocols available. These scoring systems typically rate the drawing from best to worst often on a 10 point rank ordering scale, where 10 represents a "good" representation of a clock. Again, this test is thought to be insensitive in detecting the early stages of dementia, and like the MMSE, its sensitivity improves with increasing severity of dementia.

Confusion Assessment Method. Because the prevalence of delirium is high among elderly medical inpatients, the GPCOS's initial screen includes the CAM. The CAM can be completed in less than 5 minutes, and consists of nine operationalized criteria. The instrument was validated in subjects residing in general medicine wards and in outpatient geriatric assessment centers. As it was also adopted for use by the PIECES initiative, it is used by the team whenever a delirium is suspected. Indeed, prompt recognition and treatment of underlying causes of delirium bode well for a full recovery.

Kingston Standardized Cognitive Assessment-Revised*. Considerable weight is given to the results of the KSCA-R, a psychometrically valid and reliable instrument designed to diagnose dementia. The KSCA-R was developed to provide a more reliable assessment of intellectual functioning in the elderly. Its purpose is to identify changes in cognition that are commonly associated with dementia. The KSCA-R is a paper and pencil test taking 25-45 minutes to administer. It is a standardized, cognitive assessment battery comprising 17 different sections, such as concentration, memory, language, calculation, psychomotor/spatial skills, abstract thought, and perseveration. Demonstrated criterion-related validity (i.e., behaviours related to concomitant brain damage) and inter-rater reliabilities for the 17 sections are high (i.e., Pearson r's > 0.81).

Normative data for the KSCA-R were obtained from healthy independent community-living volunteers aged 65-91, and from in- and out-patients with a DSM-IV diagnosis of dementia. The resulting means and standard deviations for both normal and demented patients are used to derive percentiles for the Total Score in each sample. Unlike other short screening instruments (e.g., MMSE) that rely on "cutting scores" to determine
dementia, the KSCA-R relies on the use of percentiles to make comparisons both within and between the normed groups. Thus, all scores are expressed as percentiles and compared with the performance of normal elderly controls and elderly patients with dementia. This feature of the KSCA-R permits a more meaningful interpretation of a patient's performance when consideration is given to an individual's education and vocational achievement. Additionally, Memory, Language, and Spatial-Motor subtotals, reported in percentile ranks, improves the detection of the early stages of dementia. Finally, the percentile ranking on the KSCA-R is used to determine whether a more detailed neuropsychological evaluation is warranted.

In summary, the assessment process adopted by the GPCOS involves an initial brief screening comprising the MMSE, CDT, and CAM. On the basis of the referral question, background information, patient interview, and the results obtained, additional testing is completed using the KSCA-R, which is considered a "lower level" battery that provides more information regarding an individual's cognitive functioning. In the event that further detailed information is required to establish a diagnosis or assess severity of impairment, "higher level" neuropsychological testing is conducted. Based on the outcome, the client may be either treated and followed in the community or referred to community support programs to preserve functioning.

References:

  1. Folstein MF, Folstein SE, McHugh PR (1975). "Mini-Mental state": a practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatric Research, 12: 189-98.
  2. Inouye SK, van Dyck CH, Alessi CA, Balkin S, Siegal AP, Horwitz RI (1990). Clarifying confusion: the confusion assessment method. A new method for detection of delirium. Annals of Internal Medicine, 113(12): 941-48.
  3. Rodenburg, M, Hopkins, RW, Hamilton, PF, Ginsburg, L, Nashed, Y, & Minde, N (1991). The kingston standardized cognitive assessment. International Journal of Geriatric Psychiatry, 6: 867-74.
  4. Crum RM, Anthony JC, Bassett SS, & Folstein MF (1993). Population-based norms for the mini-mental state examination by age and educational level. JAMA, 18: 2386-91.

* The KSCA-R is available free of charge from:
Dr. Rob Hopkins, Department of Psychology
Geriatric Psychiatry Service, Providence Continuing Care- Mental Health Services
752 King Street West, Kingston, ON K7L 4X3
Phone # 548-5567 ext 5941; Fax # 540-6128; hopkinsr@pccchealth.org

Dementia Care Network Member Agency Abstract
Access Centre for Community Care
in Lanark Leeds and Grenville

¦ In-Home Service

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  • Occupational Therapy
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  • Personal Care
  • Medical Supplies & Equipment

¦ Placement Coordination Service

  • Placement coordination services for long-term care facilities, respite care
    and adult day programs.

¦ Information and Referral Service

  • Information on community and health organizations in the tri-county
    area.

Quality health care for people of all ages.
Call:
(613) 283-8012 or
1-800-267-6041

52 Abbott St. N., #1,
Smiths Falls

555 California Ave., #1
Brockville

Web site:
www.llg.ccac-ont.ca